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Flo's avatar

This was such an interesting read! I think it’s super, super important and I love a lot of what you mentioned at the end for changes to come.

I danced a long time ago and though I wasn’t competitive, I went multiple times a week every week growing up for classes. When it got close to the time around where I stopped, I was getting ready to have some personal changes (I.e. new school). But not that long after me there, started my first journey with a bizzare knee issue that I now know was probably EDS related.

I say all this to ask- do you think dancing or any sport/activity that favors hypermobility can play a role in “holding things together” if you will? I was active outside of dance but it was definitely one of my main sources of movement/exercise.

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Tami Lynn Ross's avatar

I agree, this is key information. It was only when my daughter's dance injury wouldn't heal that it prompted a journey toward an EDS diagnosis that everyone started to realize it wasn't something she could push through or that she was being timid or afraid. There is so much opportunity for those that interact with our dancers almost daily to be both aware of EDS and to help them support their bodies and their long term health.

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