I feel like when they are able to understand that it’s a condition affecting things throughout the body, it starts to make a little more sense somehow. So seeing this list of symptoms here all up front is super helpful. Would make it way easier than me trying to explain what all connects back to hEDS for me!
I am going to print this page and add it to my medical records as an awareness piece for my medical team. Thanks, Dr. B!
Thank you so much for the extremely kind words. I am so glad you found this resource helpful! I appreciate all you do to help spread the word!
This is a good idea! I’ll have to do the same especially for mine who I spend a lot of time explaining hEDS to.
You are definitely not alone. What have you found most helpful?
I feel like when they are able to understand that it’s a condition affecting things throughout the body, it starts to make a little more sense somehow. So seeing this list of symptoms here all up front is super helpful. Would make it way easier than me trying to explain what all connects back to hEDS for me!
Thank you so much for your comment! Agreed that it’s so important (for clinicians especially) to understand that these conditions are systemic! 🧬❤️🩹